Trial Number

295-22

Condition

Fragile X Syndrome

Participant Age Range

4 years to 23 years

Participant Gender

Any

Enrolling Participants

Yes

Overview

Characterizing the Natural History of Fragile X Syndrome to Inform the Development of Intervention Outcome Measures

This project is an extension of the CDC-funded FORWARD (Fragile X Online Registry With Accessible Research Database) study. This current extension project is known as FORWARD-MARCH (Multiple Assessments for Research Characterization) because it will include multiple assessments to characterize behavioral, adaptive and cognitive function in greater depth and thereby further improve understanding of the natural history of FXS. FORWARD-MARCH continues the mission of FORWARD to better understand the natural history of FXS in order to improve the lives of children and adolescents with FXS and the lives of their families. FORWARD-MARCH will also better define trajectories of development in FXS that will be useful in understanding the long-term effects of an intervention relative to the natural history of FXS.

Provider

Related Clinical Trials

Click on the category you are interested in.

Name
Address
Enter Trial number from the area just below the marquee.
How would you prefer to be contacted?
How did you hear about us?
Are you a current MemorialCare patient?
This registration is for:
CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions.